The Purpose of this Blog

The goal of this blog is to provide education and bring about higher awareness about Down syndrome. It is to share that life with Down syndrome (DS) is not scary, horrible, or to be feared.

My experience comes from raising my daughter, Nebraska Larae (Braska), born November 2006 with Down syndrome.
The posts on this blog are related in some way to life with DS or disability, and they are reposted here from my other family blogs. There are links to those blogs in the margin on the right side of this blog if you would like to visit them directly.

Thank you for coming by.

Thursday, May 29, 2008

I think HE can dance...and more!

I'm a big fan of So You Think You Can Dance on Fox. Last night we were watching it on the DVR and when this young man appeared, I stopped and said, "No way!" Both M and I stopped what we were doing and's what we saw.

After it was over, we we grinning, talking about how great his speech was and all kinds of what I call "geeky" DS stuff (therapies, diagnoses, characteristics, etc). Then we both said that the blogs would go wild in no time. This is just the kind of thing that we like to see, so why not post it?!?

This morning, there are entries on a few forums I watch, and Meredith is the first blog on my reader to post on it. I'm sure more will follow. But all blogging silliness aside, this guy is really neat. He is a neat guy, DS or not, but I personally believe that at least part of it is because he IS who is IS and has learned to be more than ok with that. That's all we want really. Go Brett!!

Saturday, May 24, 2008

The Reason

Moving is no fun. Packing and unpacking is not enjoyable work. Leaving a life and a place we loved for a place we don't really know is scary. Missing friends and coworkers we liked so much is painful. Giving up something I'd dreamed about and never thought I'd actually have in my backyard is really hard. (I love this pic, just had to clear and blue.)

Why did we do it? Why would we up-end our whole life? What could possibly cause us to do such a thing?

Nuff said.

Tuesday, May 6, 2008

Heading south

It's big news time--We're moving to St. Louis. Well, actually St. Charles, just NW of St. Louis. It's where I lived before we got married 7 1/2 years ago and I moved to Champaign. It's where M got a new job, just finalized yesterday after a whirlwind process that only began late last week.

It's a bittersweet time, as we will miss Champaign a whole lot. This is the longest I've lived anywhere in my life, and that's something. It's been very good to us, and sometimes it's been a little cruel to us, but that's life in this world. All in all, I will think on my time here very fondly.

We are excited about being close to family, close to friends in that area, close to Braska's doctors, eliminating the trips down for appointments and such, trading a 3 hour drive for about 30 minutes to downtown. The new job is very good, and it seems like it will be an easy transition for M to slide right into. He starts in 2 weeks, so the chaos will be overwhelming for a while, but in the end, I really believe life will be much simpler and that's a BIG deal to me.

Big kudos to my husband for making this move. He is not a fan of change, to say the least, but he is putting his family--specifically Braska's best interest--first, and for that I'm immeasurably grateful.

More details will come as we know them. It's all so very fresh still. So far things have been miraculously smooth, so we know this is the right path to take.

(While I blabber on, here's how M announced it.)