The Purpose of this Blog

The goal of this blog is to provide education and bring about higher awareness about Down syndrome. It is to share that life with Down syndrome (DS) is not scary, horrible, or to be feared.

My experience comes from raising my daughter, Nebraska Larae (Braska), born November 2006 with Down syndrome.
The posts on this blog are related in some way to life with DS or disability, and they are reposted here from my other family blogs. There are links to those blogs in the margin on the right side of this blog if you would like to visit them directly.

Thank you for coming by.

Tuesday, January 26, 2010

One CUUUTE baby boy!!

A couple weeks ago, my friend LC’s new little brother, Jace, came to my house.  He is SOO CUUUUUTE!  I love things that are cuuute.  That’s how I say it, too. Cuuuuute!

Jace was coming to see my heart doctor that I’m sharing with him and LC, Dr J.  He’s really good, and Jace needs a good guy, so I thought he would like Dr. J alot.  Dr. J is going to have Dr. H help Jace too, and then he’s gonna be all fixed up!

After Jace had his appointment, he and his mommy Miss Courtney stopped by my house to say hi.  We told Miss Julie and Jack that they were there, so they came by to see them, too!

Jace was kind of hungry, so Miss Julie gave him some milk.  He doesn’t drink much because he gets tired when he drinks.  I used to do that, too, before my heart got all fixed.

Jack checked out Miss Courtney. 

She’s really super cool, and she always plays with us when she visits.  I hope I get to go to her house someday, because I bet it is SO fun there!

We were sad that we didn’t get to see LC that day, but she was having a blast with her friend Alayna.  Maybe I’ll get to play with them both when I go visit.  I’ll have to tell Mommy to get movin’ on that!

Psssst. Miss Courtney, maybe I’ll sneak Mommy’s phone and send you a text.

Monday, January 25, 2010

Hanging out with my friends

This week I’m sick, so I can’t play with my friends.  But I found some pictures that I forgot to show you of some fun times we had lately.

Here’s me and Jack watching Veggie Tales on Mommy’s computer.  Kinlee was climbing up on us but she fell down right before Mommy took the picture.

Then another day I was showing Jack my favorite present from Grandma C that I got for Christmas. 

You put the letters in the little sun and push and it sings a little song about the letter.  Like this… R says rrrrrr. R says rrrrr. Every letter makes a sound, R says rrrrr.  I know the whole song, but I like to push them alot of times before the song is over.  Mommy makes me go to a different toy when I do that, though.

Then on a different day, we left school early to go see Sophie and her family at the place where we see my doctors.  It’s called Children’s.  They are the best, I think.  Sophie has some of the same doctors I do, so she was seeing them that day.

Me and Jack and Sophie had alot to talk about.

Then we let our brothers and sisters in the picture with us.  Except Jack’s weren’t there, but we let him share ours.

There’s another friend I got to see, too, but you’ll have to wait til tomorrow to see who it is!