The Purpose of this Blog

The goal of this blog is to provide education and bring about higher awareness about Down syndrome. It is to share that life with Down syndrome (DS) is not scary, horrible, or to be feared.

My experience comes from raising my daughter, Nebraska Larae (Braska), born November 2006 with Down syndrome.
The posts on this blog are related in some way to life with DS or disability, and they are reposted here from my other family blogs. There are links to those blogs in the margin on the right side of this blog if you would like to visit them directly.

Thank you for coming by.

Monday, June 14, 2010

Braska: A good fashion statement [Down syndrome, blog]

I’ve heard people talk about a fa-shun stayt-munt.  Mommy told me how to spell it right so you would know what I mean…fashion statement.  Have you heard about this?  I’m not sure, but I think it’s when you put on pretty clothes and then tell someone something.  And I have something to tell you!!

So here’s the pretty clothes… these were our Sunday pictures from yesterday.  Daddy took them while Mommy was getting ready for church. Me and KiKi were playing and we didn’t stand still to do good Sunday pictures.  But Daddy sneaked in some good ones.

And now, here’s what I’ve got to tell you…..

To celebrate my new pretty blog that we worked really hard on, me and Mommy are going to be giving some fun things away to somebody who likes to read our stories!  Do you like to get stuff for just reading my stories?

And here’s how you can get stuff… You’re going to like it!  And there’s more than one thing! 
~~~~Please note…if you are reading this on the Down Syndrome in Real Life blog, please go to Braska’s main blog to enter, if you would like!  ~~~~~

1. Leave a comment on THIS POST TODAY (Monday) for an “early entry.”  (That means you want to enter even though you don’t know what we’re giving away!)  That gets your name in the hat TWO TIMES already!

2.  There’s a place on the side of the blog that says “Followers.” (Mommy thinks this is a silly name because it sounds like we’re in a big line going somewhere.)  But anyway, we’re going to see if we can’t find a bunch of new friends to share our stories with!  So if you are in our Follower list already, you’ll get your name in the hat ONE TIME  just because we are happy you like us!! AND---if you want to get on our list new this week, you’ll get your name in TWO TIMES!

3. Because Mommy likes to have friends like I do, she’s going to put her friends on her Followers list in too!  If you want an extra chance to win stuff, you can get on Mommy’s list new this week, too!  That gets your name in TWO TIMES! Click here to go to Mommy’s page so you can get on her list.

4. If you have a blog too—or if you have that book of faces thing-- and you want to tell other friends about our fun stuff this week, then you get your name in the hat another time!  Just leave me a note so I can come see it.

So there’s a BUNCH of ways that you can get lots of chances win stuff… and on Tuesday, we’ll tell you what you can win.  One of them is one of my very favorite things in all the whole world!

Wooooooo Hooooooo!!!  This is gonna be SO fun!!!  Come play with us!

Friday, June 4, 2010

Braska: Dashlyn’s sale day! [Down syndrome, adoption]

Tomorrow is a big day at our house.  Miss Julie and Mr. Allan are going to get Jack’s new little sister and my new friend Dashlyn very soon, I hope.  So we’re having a big sale in our yard tomorrow to help them have enough money to go get her.  Mommy told all about it over here.  If you live around where we live in St. Louis, you should come!!! I’d like to get to see lots of people I know!


Tuesday, June 1, 2010

Braska: Fun day in the sun [Down syndrome, traits]

I’ve got a bunch more pictures to show you, but here’s one for now.  Can you tell what I did yesterday??  It was fuuuuuuun!

(Mommy note:  I just LOVE pictures like this that show Braska’s crooked little pinky fingers.  They’re one (two?) of my favorite traits of Down syndrome. I wouldn’t straighten those little digits for anything…. So cute.)

Braska: Last school day, for now [Down syndrome, preschool]

Thursday was a big day for me.  It was the last day of school for a while.  And it was the last day with Miss Natalie and Miss Sue.  They are my favorite teachers, so I wish they could just always go to school with me.

Before school, we took some pictures… you probably figured out by now that Mommy ALWAYS takes pictures. 

Mommy says this is my Sincess Kennedy smile.  It makes her think of my friend Kennedy when I make this cute face.

Then we went to school.  This is my classroom.

When we first get there every day, we have to wash hands. First we turn on the water.

Then we get soap and wash wash wash! I love looking in the mirror, and Mommy tries to get me to look at my hands so I can do a good job.  But it’s way more fun to make silly faces in the mirror!

After we turn the water off, then we get a towel.  We pull on the handle 1, 2, 3, and then we stop.  We tear it off and dry our hands.  Then it goes in the trash.

Then we can get our nametag off the table and go play.  Well, after we match our picture on the board with our name.  But I just like to go play!

When it’s almost time to go home, I get to sit in this little chair when we all sit around on the floor and listen to a story and sing some songs.  I like to sit in it even when we’re not singing or reading.
When it’s time to go, we all get our backpacks and sit at the table.  Jack is sitting like a good boy at the table waiting for his mom.

Here’s me and Jack with Miss Natalie.  She is our teacher.  We like her a lot!

This is Miss Sue, and she helped me a lot when I wasn’t big enough to walk yet.  She is SO nice!

I gave Miss Sue some extra hugs while we were getting ready to go.

It was a pretty exciting day.  Now I have a few weeks to do other stuff with Jack before I go back for Summer School!  I can’t wait! I love school!