The Purpose of this Blog

The goal of this blog is to provide education and bring about higher awareness about Down syndrome. It is to share that life with Down syndrome (DS) is not scary, horrible, or to be feared.

My experience comes from raising my daughter, Nebraska Larae (Braska), born November 2006 with Down syndrome.
The posts on this blog are related in some way to life with DS or disability, and they are reposted here from my other family blogs. There are links to those blogs in the margin on the right side of this blog if you would like to visit them directly.

Thank you for coming by.

Thursday, December 31, 2009

…to you!!!

Wednesday, December 30, 2009

Christmas E

The day before Christmas is my favorite, I think.  I love letters, and everyone kept saying that day was Christmas E Day.  Isn’t it cool that Christmas gets its own letter E??  Mommy did tell me that it didn’t mean the same thing, that its suppose to have a V in there too, but I just like the E by itself.

We got to open a present on Christmas E after dinner.  Miss Linda is a really nice lady from Daddy’s work.  Sometimes me and KiKi go to her house to see her and Mr. Gary.  And she got us some Christmas presents! I think that’s super nice!

First I opened mine, and Daddy helped me. 

The box had fishies on it, so I was happy.  Then Daddy told me it was called uh-qwar-ee-um.

It’s a light and little fishies go around and around.  It’s the BEST!!!

There was someone else nice at work who left a card and some money on Daddy’s desk for him to get us a present, but we don’t know who did it.  It was a secret.  So Mommy and Daddy got both of us sisters some things to put on our ears and hear our movies.  This way we can listen to our shows even when they’re listening to other stuff.

First I tried them on. Mommy put a little movie on her computer.

I could hear the music!!

I think I’m gonna like these things!

Then, before we went to bed, Daddy read us the first Christmas story about when Jesus was born. 

Monday, December 28, 2009

Fuzzy Christmas Jammies!

Here’s a bunch more pictures of me and KiKi and Jack from when we tried on our matching p-jammies that Miss Julie got for us… remember they all get bigger if you click on them.   
triochair4triochair3triochair1triochair2jackbraskaxmas2       triobooktriobook2 braskabook jackbook1 jackbook2

“Hey, can I read that with you??”

”Watch it, girlie.”
(Make sure you click on the pic below to see Jack’s face!)
jackbraskabook3jackbraskabook2    jack1 jack2 jackbraskaxmas1  jackbraskahat1triostairsxmas2triostairsxmas1triostairsxmas3jackbraskaxmas3 jackbraskaxmas7jackbraskaxmas6jackbraskaxmas4 jackbraskaxmas5  triostairsxmas4 triostairsxmas5 triostairsxmas6

Sunday, December 27, 2009

Ohhhhhh…jingle bells!

I’ve got a bunch of pictures to show you from our really fun Christmas times, but Mommy’s busy cleaning up so she can’t help me do pictures right now.  So here’s a little song we did last night that you can listen to until the pictures are ready. 

We sing it every day at school, and it’s my favorite!  I ask Mommy to sing it sometimes in the car and sometimes before bed and sometimes when I’m eating and sometimes when I’m in the bath.  It’s a good song!  Oh, and Mommy said to tell you that I kinda get silly and loud, so get ready to cover your ears!  But sing along!!!

Tuesday, December 22, 2009

No school today

I like school alot, and when Mommy gets me up in the morning I always tell her “Sa-kool tuh-day!”  And today was P-Jammie Day!! But I didn’t feel very good when I got up.  I tried to tell Mommy what was wrong but she didn’t understand.  So I just laid on the couch and cried.  She knew something was wrong, but she didn’t know what it was.

So we went to pick Daddy up at work so he could come to the doctor with us and help with KiKi.  Doctor told us that I have a bad ear infection in my right ear.  (My first one ever in my life!!)And my throat is really red and spotty.  Doctor stuck a thing in my throat—that I did NOT like—and it told her that I didn’t have something called “strep.”

On the way home, I went right to sleep.  Mommy snuck a picture with her phone.

I got new medicine, so I hope it makes me feel better.  I don’t want to be sick for Christmas!

Monday, December 21, 2009

Christmas dress-up, part 2

This is the dress I call “shiny” and I like to look at it.  It was another nice present from some very special friends, Miss K, J, and J.  Daddy thought I looked very pretty when he came to see me dressed.

The first one is Mommy’s favorite one.  And there were bunches of pictures, but these were the ones I wanted to show you.

Sunday, December 20, 2009

Christmas dress-up, part 1

I’ve got so many cute things to wear for Christmas, so we’ve been trying to take pictures to make sure we remember them all.  (Some of these are ‘specially for Miss Karol, but we’ll let all of you see, too.)

Mommy keeps trying to take pictures of me and KiKi together, but we don’t ever look at the camera at the same time.  That makes Mommy growl sometimes. But look how cute we are!

This is a cute sweater that somebody gave me, and there’s little Christmas things on my shirt underneath the sweater too. 

[Oh, and the blue things on my legs are my ther-uh-togs (Theratogs).  Miss J at school helps me learn to walk and get stronger, and she’s letting me use these.  They help me ALOT!  I’m walking better with my walking toy all the time, and sometimes I try to do a step or two myself.  It’s hard work though!!]

This was a present from Miss Karol… isn’t it so cute!  That’s what I always say when Mommy gets my clothes out…”Cute!”