The Purpose of this Blog

The goal of this blog is to provide education and bring about higher awareness about Down syndrome. It is to share that life with Down syndrome (DS) is not scary, horrible, or to be feared.

My experience comes from raising my daughter, Nebraska Larae (Braska), born November 2006 with Down syndrome.
The posts on this blog are related in some way to life with DS or disability, and they are reposted here from my other family blogs. There are links to those blogs in the margin on the right side of this blog if you would like to visit them directly.

Thank you for coming by.
Showing posts with label Reece's Rainbow. Show all posts
Showing posts with label Reece's Rainbow. Show all posts

Saturday, November 13, 2010

She’s Dashlyn Now! [Down syndrome, international adoption, Reece’s Rainbow]

Remember how we have been waiting for Jack’s new little sister to come home?  Well she’s not home yet, but very soon!  Miss Julie and Mr. Allan got to go over to where she lives and meet her, and the people there said she is all theirs now!  So her real name is Dashlyn now!  Isn’t that exciting?!? 

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Isn’t she just the prettiest little poonchin!?!

She’s gonna be my new BFF, and I can’t wait until she can come play at my house.  Mommy says she is gonna be part of my Christmas present this year, and I think that is the best present ever!  I’m gonna show her how to do her hair pretty with bows and how to say funny things and how to wear the cutest little outfits and how to walk like a big girl.  I know about that stuff, you know.  We’re going to have SO much fun! 

Go over to her blog and see lots more pictures and read the stories about her playtimes with her new mommy and daddy.

Saturday, October 2, 2010

31 for 21: Want an iPod touch?

I don’t have one, but I’ve got a friend or two who would NOT be without theirs.

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Stephanie is offering up an iPod touch in efforts to raise funds for this little beauty to find a home.  Her name is Tori, she is in Eastern Europe, having already been transferred to the dreaded mental institution when she turned four, and she has a diagnosis of cerebral palsy.

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Stephanie just returned from rescuing her two precious boys from this country, she saw the conditions that so many sweet children live in.  She has a heart to help them find homes, and she’s putting her money where her mouth is and putting up the iPod touch for incentive for others to join the effort.

It’s great. I will help her spread the word. Absolutely.

But really, it’s a little sad to me that we need to offer fancy prizes for people to donate five or ten bucks.  It’s still sad to me that people can’t just hear that this child will in all probability die in the institution where she lives with others of varying degrees of mental and physical disabilities and WANT to help bring her to a loving home.

Such is reality.  I don’t have any desire for an iPod touch, not really into any of the “i”gadgets at all.  But I am into kids who should not have to live in cement rooms without interaction from anyone who can love on them.

Many of us bloggers are doing this 31 for 21 thing…a great time to find blog content for posts.  So I ask… can you AT LEAST share Tori’s story and hopefully donate a bit to her account as well.  We want to help a family find her, help a family afford the adoption process, and help that family bring her home soon?

Friday, June 4, 2010

Braska: Dashlyn’s sale day! [Down syndrome, adoption]

Tomorrow is a big day at our house.  Miss Julie and Mr. Allan are going to get Jack’s new little sister and my new friend Dashlyn very soon, I hope.  So we’re having a big sale in our yard tomorrow to help them have enough money to go get her.  Mommy told all about it over here.  If you live around where we live in St. Louis, you should come!!! I’d like to get to see lots of people I know!

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Saturday, March 13, 2010

21.3.10: Meet the precious Zoe

In honor of World Down Syndrome Day on March 21, Reece’s Rainbow has a special project this month to help sponsor children for adoption. 
21.3.10
I have chosen little Zoe as my special girl, to spread the news and put her cute little face out there, hoping that someone might want to scoop her up and bring her home. 
zoe-rr Her birthday is just 6 days before Braska’s.   She has just 8 months left in her “baby house” before she will be sent to a mental institution.  Rarely do small children live more than a year in that environment.  I just can’t bear to consider my Braska going to a place where no one would interact with her and she would be left to fend for herself, IF she’s not restrained to her bed.

How I wish I could go and get her, along with several other little ones, or at the very least find families to give them homes.  Yet all that is open for me right now is to tell everyone about the need, and pray that people will open their hearts for little Zoe.  She’s healthy!  She’s walking and eating and active and will blend so well with a new family!

From the Reece’s Rainbow site:
Beautiful blonde hair and a glowing personality. She is healthy, with no heart condition. She is fully functional...walking, active, many words, able to eat and dress with minimal assistance, and an orphanage favorite.

She is facing the institution, please consider adopting Zoe!

More photos available, please inquire.

We have many children waiting in this same orphanage who can be adopted together. Children in this orphanage are not held much past the age of 4, so we need a family quickly.

I’m asking 3 things of you all, every reader…
1. Prayerfully consider if Zoe might be waiting for YOU specifically.  Do you have a place in your family for her?  You may not feel you have much to offer, but is a family not better than an institution for a 4-year-old??

2. Can you give just $21 to Zoe’s fund?  If you are unable to adopt her yourself, can you share this minimal amount with the family who WILL come for her?  There are so many families who desperately want to adopt but simply do not have the finances to do so.  Can you help THEM if you’re not in a position to bring her to your home? You’ll see a Chip-In box in the right margin under Zoe’s button. Donations are tax deductible.

3. Will you post Zoe’s button on your blog or Facebook page, asking others these same questions?  The code for the button is below and in the right margin.Photobucket

Friday, March 5, 2010

Exciting news (almost) in our family

Jack’s going to have a little sister!!! Woo hoo!  Julie and Allan have committed to and started the process of adopting little Dasha from Eastern Europe through Reece’s Rainbow!  Her name will be Dashlyn Belle, which I think is SO neat.  This has been on Julie’s heart for some time, and it is now so very neat to see them finally able to move forward!

Grab This Button

Be sure to visit their adoption blog here (put it in your reader, Reader users), grab the button above to add to your blog or your Facebook page, and spread the word that another little one has a Mommy and Daddy on their way to get her soon!  Of course, if you’d like to donate to the costs of bringing her home, they’d more than appreciate that as well.

I’m kind of living my adoption dreams vicariously through my friends, and this family is practically family to us, so I’m really happy for them and can’t wait to get to see this little doll smile and play with my girls as they all gang up on Jack.  She’ll be Braska’s new best girlfriend. Can’t wait!

Congrats Julie and the rest of the fam…and many prayers for a smooth process!

Braska: Jack’s gettin’ a sister!!!

Guess what Mommy told me???  Jack’s gonna get a new sister!  She’s already born, so she’s not in Miss Julie’s tummy, but she lives far away, so they have to go get her and bring her home. 



Grab This Button

We are really happy about this because I’m gonna get a new friend to see ALL the time, just like when I get to see Jack ALL the time!  We’re going to have SO much fun!  Me and KiKi and Dashlyn are gonna do all kinds of fun things together, and we’ll let Jack play with us too, of course.  But think of how cute us three girls are gonna be in all our pink!  Miss Julie likes pink, so we are going to make sure Dashlyn has lots of it, don’t you worry.  Me and KiKi have plenty to share.  Mommy even helped make Dashlyn’s blog pink, so you can go see it if you want.

Mommy says it will be a while before she gets to come to visit our house because they have to do a lot of work and go a long way to get her, but I hope she comes soon!

Thursday, February 11, 2010

Connecting the Rainbow

I’ve blogged about Reece’s Rainbow often. (Though not recently, I realize now.  Bad me!)  But there is now a new venture called Connecting the Rainbow that is working with families who choose to keep their little ones with DS in countries that don’t have any support system for them.  The goal, of course, would be a time when there is no need for international adoptions because the parents are keeping their little ones with disabilities and had a good support system in the society to care for them.

 

Grab This Button

Connecting the Rainbow is focusing on Bulgaria right now, and they have a very cool opportunity to help right now.  Beyond Play is a therapeutic toy company that has agreed to give 15% of all items purchased from CTR’s wish list back to CTR.  It’s a great chance to buy a toy for their cause, or for yourself, and contribute to CTR at the same time.  I am so privileged to have come to know via blogs, forums, and email the friends who are making this venture happen, and they are truly wonderful, caring people.  These kids are their focus, and educating their families is going to be so very rewarding.

They also have an additional wish list you can check out. 

Many of these items are very inexpensive and will be an excellent gift to these families who already trying to go against “the norm” as they choose to raise their kids at home.

Please take time to glance at the items and see if there’s something you could send to Bulgaria for these families.  You don’t have to mail it overseas yourself, don’t worry!

Tuesday, February 2, 2010

Lovely Lera

Lera

(Taken from Bethany’s blog.)

She is an orphan living in a baby home in St. Petersburg, Russia. The exact same city from which (Bethany’s daughter) Nika came.

Lera needs a family ... like, yesterday. She had a family committed to adopt her, but that fell through and now she needs another family.

But time is not on her side. At age four, orphans are typically transferred out of baby homes. Lera is 4 1/2 years old ... and by the grace of God, she is still at the baby home.

She has an $8,605 grant in her name through Reece's Rainbow. This is a HUGE start for any adoptive family. She also has another $2,000 that was raised for her by the first family that planned to adopt her -- they want to give that money to her new family.

Could you be her family?

Lera has Down syndrome. She is reported to be very high functioning and by the looks of her dolly, she is engaged in pretend play. She is reported to have a heart murmur, but no other health concerns.

So ... what do you say? Could you be her family?

For more information, please email Andrea at Reece's Rainbow. Please?!

Tuesday, December 8, 2009

Lily’s Auction

Michelle and Brian at The Zoromski Chronicles are in the process of adopting Lily, from Eastern Europe, who they found via Reece’s Rainbow.  Their little Ruby is one of my favorite little blog princesses, along with brother Braden and sister Karly, and I was so excited to see that the were taking this big step to bring another princess home to add to their family.

They are hosting a blog auction at Lily’s blog, and there’s some good stuff there!  They’re going to even get the things to the winners by Christmas.  So go take a peek and see if there’s not something you could bid on and get a great deal and help a very cool family bring a precious girl home quickly!


Grab This Button

Sunday, December 21, 2008

Your opportunity to help NOW

I just found out about a need, and you can help. Yes, even you over there!

The Newbold family is in the Ukraine right now to bring home their little girl with DS. They had a daughter with DS who died from leukemia at age 2. They have since committed to adopt two children, one is home, and now they are there to get little Dasha. I don't know them at all, but they are working through Reece's Rainbow. They have just learned that the amount they were told by the government to have ready is incorrect, and they are short $2000. They also have to come home without their daughter, for the second time, as they can't get the final adoption process done until next month now. So more plane tickets must be purchased. And so their expenses are sudden and significant. I can't imagine how devastated they must be! And how difficult when they thought they would be coming home with their best Christmas present!!

I gave right away. I just had to. This is what our community of blogland is all about, support in whatever form is needed. I ask you to pray, primarily, that they will be able to overcome these obstacles. And I ask unapologetically that you give, even $5.00 will be so helpful. Please bless this family and share your encouragement on their blog.

Thank you.

Monday, December 15, 2008

Great gifts for therapists, Angel Tree 2008

I just went and made my second round of "gift buying" at Reece's Rainbow. We did this last year and are doing it again. The response from our team last year was amazing.

Alot of us buy for Sunday School teachers, school teachers, therapists, daycare providers, etc. It's can be a chore to find the right thing, and if we admit it, most often what we give is either edible (not that it's bad!) or it's a dust collector. The thought is nice, but who really benefits? So we started last year with donating to Reece's Rainbow in honor of our therapists and service coordinator. They were so touched, and a couple of them actually ended up paying it forward and using the idea for some of their gifting as well. I heard from more than one of them that they get so many nice things, but they really don't *need* any of it, so this was a way to be appreciated but have it help someone who really DOES need it. I just gave them Christmas cards with a note inside that we'd made a donation in their honor and stating our appreciation for their work. So simple, but so very well received.

Please check out the adorable faces of kids who are still looking for homes. (Click on the picture below) You can even get an ornament with the child's picture that you've donated toward if you do it today (the 15th).



I give to RR frequently and significantly. I don't say that for any pat on the back, it's not about that. It's about putting our money on what's important. It's about stopping just the talking about how we are all supposed to help others and put those with needs first and actually DOING it.

I hear people talking about if you have "extra" to give to RR or other great causes. I appreciate any plug to help others. But I don't know anyone who thinks they have "extra" money. I know that I don't. We're literally cutting back on everything from what brand of milk we buy, to eliminating some of our "fun stuff" that we don't really need, to keeping our house less toasty warm in order to simply make ends meet each month. We're not doing Christmas gifting with family, (which is more than fine with me since I feel like Christmas gifts should be for kids anyway...all us adult siblings can buy whatever we might want so gifting becomes a hassle and stress to try to find something they haven't already bought for themselves, but I digress) and I don't miss it because to me Christmas is not about the gifts at all. It's about yummy meals and pretty lights and having fun and mostly about celebrating Christ's birth and the true gift that is to all of us.

Regardless of what the bottom line in the checkbook says, I make room for giving. We've never gone without. I don't expect we will. God always blesses us, not necessarily monetarily, of course, but in whatever way, it's more than worth it. It means I don't get the Chinese food every time I want. It means I only have one pair of maternity jeans. It means we eat alot of the same cheap food at home. And I don't mind one bit. These kids don't have any of that, and if they don't find homes, they may not even have their lives. Institutions are no fun, and that may be their future. It is just that simple to me.

So you may not have extra. You may have already done your shopping. But do you have something that could make a difference to a child's entire life, not just their playtime habits for the next few days? Will Braska wish we'd have given her some toy this year or will she benefit more from knowing that her parents value people and especially children who need to be spoken up for?