The Purpose of this Blog

The goal of this blog is to provide education and bring about higher awareness about Down syndrome. It is to share that life with Down syndrome (DS) is not scary, horrible, or to be feared.

My experience comes from raising my daughter, Nebraska Larae (Braska), born November 2006 with Down syndrome.
The posts on this blog are related in some way to life with DS or disability, and they are reposted here from my other family blogs. There are links to those blogs in the margin on the right side of this blog if you would like to visit them directly.

Thank you for coming by.
Showing posts with label physical therapy. Show all posts
Showing posts with label physical therapy. Show all posts

Sunday, December 20, 2009

Christmas dress-up, part 1

I’ve got so many cute things to wear for Christmas, so we’ve been trying to take pictures to make sure we remember them all.  (Some of these are ‘specially for Miss Karol, but we’ll let all of you see, too.)

Mommy keeps trying to take pictures of me and KiKi together, but we don’t ever look at the camera at the same time.  That makes Mommy growl sometimes. But look how cute we are!


This is a cute sweater that somebody gave me, and there’s little Christmas things on my shirt underneath the sweater too. 

[Oh, and the blue things on my legs are my ther-uh-togs (Theratogs).  Miss J at school helps me learn to walk and get stronger, and she’s letting me use these.  They help me ALOT!  I’m walking better with my walking toy all the time, and sometimes I try to do a step or two myself.  It’s hard work though!!]


This was a present from Miss Karol… isn’t it so cute!  That’s what I always say when Mommy gets my clothes out…”Cute!”
 

Tuesday, October 27, 2009

Braska: 31 for 21: Silly girl walking

I’m working hard on my walking with only holding one hand of Mommy’s and taking steps by myself sometimes too!  Here’s a movie we made at Grandma C’s and PaPaw’s on Sunday.   I was showing off a little, but everybody kept cheering for me!

Sunday, October 4, 2009

Braska: 31 for 21: PT Days

One day every week I get to go see Miss A, or she comes to see me, and we do some fun stuff. We call these PT days.  If she comes to my house, we go up and down the stairs, but she doesn’t carry me. She lets me climb up by myself, and then I go down, too, but I still have to have a little help sometimes.  I’m getting better though!

Last week, we went to school to see Miss A.  First I had to get some comfy clothes on.  We work hard, you know, so I have to be able to move alot.


Then KiKi wanted to get in on the pictures.  She thinks she has to do everything I do!

I sat down to wait for a few minutes before it was time to go.  But KiKi wanted up in the chair too! 

This week Miss A had some little thing that she put on me called Ther-a-togs. They are supposed to help me stand up better or something. We always do the letters on the wall.  It’s one of my favorite things. I can say most all of the letters when she gives them to me.


That one is H.  I like H.

We also do the tricycle and we climb steps and do the slide, and sometimes we do the swing.  And my favorite thing??  It’s the Space Maze!!!  It’s the best for sure!!!  Here’s a picture of me from a few weeks ago in the top part of the Space Maze. (There’s 3 parts.) I can go all the way up by myself now and I love it!

Sunday, September 27, 2009

Mommy report: Update, part 2-gross motor

Again, to review, Braska is 34 months old, she rolled over at 8 months, she sat independently at 13 months, and she crawled consistently at about 25 months. Over the last year she’s slowly conquered pulling to a stand, cruising, and taking steps with two hands help.

Braska has PT every week.  She loves her Miss “An-juh-wa” very much, and she performs better for her than almost any of her other therapists.  She has really taken off over the past few months since we’ve been having some sessions in the motor therapy room at Braska’s school.  She LOVES that room and is totally energized when she’s in there. They swing (a favorite always) and climb and do little obstacle courses while crawling.  She especially loves the space maze, which she has finally been able to master—all three levels—all by herself.  I often say that if we ever were to win millions, one of the first things I’d do would be to build one of those rooms on our house and fill it with all that cool therapy stuff.

She slowly worked her way through pulling to a stand with help, doing it on a flat surface (like a wall, nothing to grip) and cruising down the couch and then a flat surface, like down the hallway.  In the last month or so, she has started to try to stand up on her own, and she can sometimes do it for a second or two, but usually only once, then her little legs don’t cooperate after that.  She likes to be upright, though, and she spends alot of her days standing at the toy chest, the couch, Kinlee’s ExerSaucer, or at the front door looking out.

A couple weeks ago, her PT told me that Braska’s teacher at her pre-preschool said she had taken a step at school.  I was surprised.  We tried to set her up for repeating it at home, but she just lunges once she’s standing, not moving her feet. 

Then last Friday she took a step going from a chair to the couch, and again I was surprise.  Sunday we went to M’s family’s house for football watching, and Braska blew us all away by standing up from her little wooden chair in the middle of the room and taking 2 steps to the coffee table.  This was the first time she had done that unprompted.  Everyone got all excited and then she did it a few more times between people on the floor with her.  We debated if we get to count that as her “first steps,” knowing that it will be a long time still til she is officially walking, but I think we’re going to give it to her.

Her biggest issues are that she is just plain one of the lowest tone kids that some of our therapists have seen.  We have had this comment shared with us on several occasions.  She just has to work SO hard to move herself at all.  It doesn’t help, I’m sure, that she’s so darn small and light. She doesn’t have much muscle mass at all.  She struggles a great deal with her core strength especially, and even with her SureSteps, she has a hard time keeping aligned right and balancing on her own.

One thing she has down pat is crawling…finally.  She is a speed crawler at this point!  Don’t turn your back because she will be gone!!  She has also mastered climbing the stairs by herself, and pretty quickly, and she is just now getting the hang of going down the stairs the proper way.  We don’t let her do it unsupervised yet, but she’s making great progress there.  She loves to climb up on the couch or into the recliner.  Any climbing she can do is fun for her.

Overall, she’s working hard and gaining strength, but it is just a VERY slow process with her.  I’m guessing at this point that Kinlee will walk before Braska does, which will be weird, but it’s fine.  In the end, it doesn’t really matter.  And I can catch them easier if they’re crawling anyway!!

Stay tuned. Update, part 3—speech will be next.

Saturday, July 11, 2009

Braska: Home FUN therapy

I had the most bestest fun today! 

I love to play on Mommy and Daddy's great big bed, but I'm not allowed to be up there without someone to watch me because Mommy says I don't watch the edges like I should.  But that's ok because it's way more fun when Daddy plays with me!

Miss A lets me climb all over the big cloud pillow thing at school, and to practice at home, we put lots of big pillows all over the bed and I climb on them.  It is SO much fun!!

(Mommy note: The "headboard" to our bed is a mattress, turned on it's side.  It's a longer story than you want to read, but it actually works really nicely, and it fits perfectly with our king-sized bed.  You'll see why this info is helpful... back to Braska.)

So today we were playing on the bed after we got up from nap, and I wanted to get up on the higher part of the bed.  And I found a NEW fun thing to do...

Here, I'll show you in a little movie.

What do you think? You wanna come to my house and try it?? Come on over!

Friday, June 26, 2009

Braska: Working hard with Miss A

Sometimes I get to go to my school to do PT with Miss A. I really love those days! It's so much fun to play in the big room there. There's lots of climbing things, and I just love to climb. But I always start by banging on this part and getting all ready to go.

PT1

Then I like to swing. Sometimes the swing is like my swing at home, sometimes it's a big hard board that I sit or crawl on, but this time it was different. I didn't know what to do at first, but then it was kind of fun.
PT3 PT4 PT5

Miss A put me on the thing called a scooter. She and Mommy didn't think I'd be able to do it since my arms are not strong at all. But I did it! I had to work REALLY hard, but I did it.
PT2

Here's a super short movie of me showing off on the scooter.

Sunday, May 17, 2009

Braska: Fun Workouts!

I got to go to my school a couple weeks ago an extra day to meet Miss A, my PT, and it was SO fun!! Usually she comes to my house, but it was special to get to go play with all the neat stuff at school. I got to use the same walker toy that I practice with when I go to school on Mondays. I surprised Mommy and Miss A because they didn't know I could walk this good with the walker toy!


We went to the place they call the "motor room" to do some exercises. I loved the swing!


There was a really fun place to crawl and climb, and I just LOVE to climb, so I did this part lots of times.












Miss A and Mommy were really excited about how hard I worked and how much fun I had. I hope we get to go back alot!!!

Friday, March 20, 2009

Braska: Bubbles and balls

Last week, Daddy and Mommy cleaned out their cars one day when it was really warm outside. While they worked, I played with my color balls. I just LOVE them! Great gift, Papaw!!


Yesterday, my PT came to see me. I worked really hard at making my legs stronger. She made me bend over from standing up and pick things up on the floor. It was so hard! And then I climbed all the way up the stairs from Daddy's room downstairs!! Everyone was really excited! Since I did so good, I got to play bubbles. They are my favorite!
(Mommy note: Anyone want to guess what my favorite part of this pic is? Think fine motor... Isn't it funny that our Mommy brains work this way!!)

Wednesday, March 11, 2009

Braska: My first nightgown

Last week, it was really nice, warm weather a couple days. We opened up the windows and let the nice wind in the house. Since I didn't need to wear my really warm p-jammies, Mommy let me wear a Blues Clues nightgown that my friend gave me last year. It's like a dress that you can sleep in! Usually I don't get to wear them because I don't like to keep my blanket on at night and it's cold in our house when we sleep. But since it was nice, I got to try it out and I just kept it on because I liked it so much!








My PT showed me, when she came to visit the day before this, how to stand up at the door and see outside to the street.


Since the wind was blowing in nice, I stood there for a long time. (Mommy note: I just think this picture is too sweet...not sure why, but I love it.)


When Mommy wasn't looking, I decided to try to see what the screen felt like on my tongue. I think she caught me, though. She said I shouldn't do it because it was dirty, but I thought it was pretty fun anyway. I like weird stuff on my tongue--as long as it's not food, ya know!



I practiced my walking in my gown too. It's nice not to step on my pants like I usually do!


Friday, January 23, 2009

Braska: Funny words and more walking

Miss J came on Tuesday to see me. We worked on talking about things and asking for things. She brought bubbles again, and I really like bubbles! She asks me what I want, and I like to just tell her the last thing she says. She wants me to pick things, but I just like to say everything that she does! She says we'll keep working on it. But the bubbles! So much fun!



Mommy and Daddy think I'm funny because I've been saying, "Oh yeah!" about alot of things. Here's a little short movie to show you, and it also shows a couple other of my favorite things... cow and horse sounds!


Yesterday, my PT came to see me. We practiced my walking again, and I'm having alot of fun doing it! So last night Mommy and I showed Daddy how good I'm getting. I just wanted to do it over and over. I really like my walker!

(You might want to turn your sound down a little...Mommy gets kind of excited and goofy!)

Pretty soon I'm gonna be going all by myself!

Monday, January 19, 2009

Braska: Walkin', babies, and lookin' good

I've been doing more practice with my walker. I like it alot! I even go and tell Mommy that I want to take walks. I tell her "Wa-wa-walk!" But sometimes my PT makes me do it more than I want. Mommy says it's her job and it helps me, but I give her sassy looks anyway. This was from when she came on Thursday.


Here's a movie of me practicing with Daddy. It's a little dark because it was close to bedtime.


I still don't like to sit in my Elmo chair alot, but I do like it to be right next to me. Mommy thinks I'm silly. I just like to sit by him while I'm watching my shows.


Saturday morning we had to get ready for going out and I had a quick bath. I found a little mirror in the tub that I never noticed before. Maybe Mommy will get me a bigger one.


We got dressed and ready. I got to wear a new jacket that my friend Larkin passed on to me after Sophie was too big for it. Thanks Larkin and Sophie!


We went to Auntie Janice's baby shower, or I guess it was really for Baby Xander who will be here soon, next month right after Kinlee's coming. Xander is so lucky! He got a whole bunch of cool stuff!
Shay even got neat presents, too. She's gonna be a big sister like me. Miss Cheryl helped her with her things. Her favorite was an Ariel doll. She LOVES Ariel!


I didn't get a nap before, so I fell asleep and took a long nap while everyone was eating and playing games. It was comfy!


On Sunday, I got to wear a dress that I got last year. I finally got big enough for it! It's pink and soft with little sparkly snowflakes. It even matched my BabyLegs, and they kept me toasty warm for church.