The Purpose of this Blog

The goal of this blog is to provide education and bring about higher awareness about Down syndrome. It is to share that life with Down syndrome (DS) is not scary, horrible, or to be feared.

My experience comes from raising my daughter, Nebraska Larae (Braska), born November 2006 with Down syndrome.
The posts on this blog are related in some way to life with DS or disability, and they are reposted here from my other family blogs. There are links to those blogs in the margin on the right side of this blog if you would like to visit them directly.

Thank you for coming by.
Showing posts with label signing. Show all posts
Showing posts with label signing. Show all posts

Saturday, October 2, 2010

Braska: More pictures from my friend visits

Remember back when I had a party weekend with lots of friends and lots of parties? 

Well I have some more pictures to show you from then.

Me and Jack stood in the picture place (by the door) for our pictures.  We have matching clothes and he’s cute. But I think I win, don’t you? 


Madelyn helped me decide what we would get at the dinner place.  She’s Jack’s big sister, and she is fun to play with.
braskamaddie


On Sunday, we went to church with friends too.  Or they went with us really.  Jack and Nichole even got to go to my class with me!  It was great!


One night, Ellie, Nichole, and Nina came over to my house.  And Jack came too.  We watched Signing Time all together while mommies and daddies talked about stuff.  Nichole is REALLY good at her signs! 

Thursday, May 13, 2010

Having twins! [Down syndrome post]

Did you do a double take at the title?  Did you jump right into the post to get the “big news”?  It’s funny what a couple words and an exclamation point can do to some people.

We’re not having twins. Or babies of any kind.  Just to be clear.

I get asked a lot about how the girls are doing in terms of development and size, relative to each other.  Only a few times have I been asked when we are out if they are twins.  I think the difference in hair length is the big giveaway for most, at least that’s been the “tip-off” for a couple people who mentioned it.  But we do get a lot of comments about how similarly sized they are.

There have been many times in the last few months when I’ve thought that this must be a little peek into what it’s like to have twins.  At least for this little period we’re in right now.  Developmentally, they are so close in age in many ways.  Not all.  Braska still has Kinlee beat with speech and language, that’s for sure.  But Kinlee is picking up words and signs faster than I can keep up.  But with gross motor, Kinlee has passed Braska by.  Kinlee can climb more efficiently, walk steadier and more quickly, she is far more balanced and solid on her feet, and she has a great deal more stamina than Braska.  With fine motor, it’s the same story.  Kinlee can manage small things, open lids, sign some things more correctly, and she can push any button she wants with great accuracy.  These are things that Braska struggles with.  Though Braska knows far more signs, she doesn’t necessarily do all the intricate finger work correctly because her little cute, stubby fingers don’t cooperate with her.

Clearly, they are very different little girls.  But for this short period, one that will probably be fading away by mid-summer, they are interested in much the same things, entertained by some of the same things, and they function very similarly in the home setting. Soon Kinlee will be enjoying her role as the leader, which she is practicing currently when she gets the chance, and Braska will be following and learning from her.  And that’s ok.  That’s not bad, in my opinion. It’s just what is.

I’m not selling Braska short, and I’m not saying Kinlee won’t learn from her later on.  I think Kinlee will always learn from Braska, and there are definitely areas where Braska will maintain her “lead” for quite some time.  But the reality of developmental delays is that at some point, the younger child will surpass the older child in some physical and cognitive realms.  We’re ok with that, because we believe Braska is exactly who she is supposed to be.  She doesn’t just “happen to have” Down syndrome, and she definitely doesn’t “suffer” from it.  She was created just as she is, and though there are some times I wish I could help her in ways that I cannot, I wouldn’t change anything about her most core qualities and design.

Comparisons can be dangerous, I know. But I am comfortable that we are enjoying this time that they are so nearly matched and we’ll celebrate them both as they grow and progress through the next stages.  We cheer Braska when she takes a bite with proper mouth and tongue position and when she closes her mouth around her straw, even if she doesn’t drink, because this is huge!  And we cheer Kinlee when she eats her whole meal by herself—veggies, meat, pasta, fruit, and all, washed down with a big cup of milk.  Different celebrations, but the same excitement for each.  We’re impressed with them both for all they do, and just because they look so similar in size right now doesn’t mean that we don’t recognize their individual needs.

It’s fun that they can share clothes. It’s fun that they both love to wear bows in their hair.  It’s fun that they both like to hold hands and walk to the car after church.  They will change, we will change, and all the elements around us will evolve as we go through life.  But for now,  it’s kind of fun having this little tiny glimpse of what it might be like to have twins.

Monday, October 19, 2009

Braska: 31 for 21: Signing with Jackson

Jack is my friend. You probably know that if you read my stories very much because we’re always playing together and he is in my class at school too.  I think he is pretty cool, and we always say hi and give fist bumps. (He calls it “pound it” but it’s ok with me.)

A few weeks ago, I was at Jack’s house so our mommies could make some fun shirts for us for the football games. (Mine is in this post if you want to see what we made.)

We played and climbed up the stairs (when mommies weren’t looking!!) and we even let KiKi play with us a little too.  Before we left to go home, we showed what we could do with our signing, the ones that both of us know. Here’s how it went…

Ok, Jack, you ready?
 
We’re gonna do some signing!
 
Hey, we’re gonna do a show, are you ready over there?

Let’s start with touchdown! No?
 
Ok, how about fish…
 
And hat…
 
Sign bird…
 
And cracker…
 
This is dog!
 
Sign baby… (we were very tired and ready for naps, can you tell?)
 
And now, we are All Done!

Monday, August 24, 2009

Braska: I love Signing Time and Miss Rachel!!

Last month, some guy broke Daddy’s window on his car when he was at work and that guy took some stuff from our car.  He took my movie player!  Can you believe that??  (You can read more about the story here and here and here.)

One of the movies I got at the library was in the movie player, and the guy threw it away.  Why wouldn’t he want to watch it?  That’s what I wanna know!  Anyway, since he threw it away, we had to pay the library for the movie, and Mommy talked about it on her page.

Miss Rachel, the one who I watch every day on Signing Time and Baby Signing Time, saw Mommy’s story about it, and she left her a note.  They talked a little and Miss Rachel said she would send me a new movie since that guy took the other one I borrowed from the library!  Isn’t that super nice!?!

So the other day we got a box from Miss Rachel and this is what it had in it… (Remember, you can click on pictures to see them bigger.)

Can you believe all that stuff??  Me and Mommy were SO excited!  I just kept telling Mommy “I want Baby Signing Time movie please!!” 

There are some cards that have words and pictures of the signs on them.


Here’s the movie that the guy took from us.  Miss Rachel even wrote me a note on it!


And she sent T-shirts for me AND for KiKi!  


This is a picture of Miss Rachel and a note to me.  We’re gonna put it in a nice frame so I can keep it forever!


And this is the movie that she sent so that the library could have theirs back too!!
  

There are also some fun things like stickers in there for me and KiKi to play with.  They go on our skin.  Mommy says it’s like a taa-too.  Oh, and there’s CDs too so we can listen to the songs and sing along when we can’t watch the movies!  I tell Mommy “I want mooosic, please!”

Isn’t that the nicest thing you ever saw?  Miss Rachel did such a fun thing for me because she sent me my favorite things ever.  Signing Time movies!!!

Thank you, Miss Rachel!  I am watching them lots and lots.  And I especially like to sign “wind” when I lay on the floor by the thing that blows cold air out at me.  I always tell Mommy “Cold! Brrrrr! Wind!!”

If you don’t have Baby Signing Time movies, you should go get some right now!

(Mommy note: The signing has just really taken off, another spurt, except that she can verbally say all the words too.  I hope to have some video of her latest stuff very soon.  The full-sentence requests are just plain amazing, I think!  And once again, many thanks, Rachel!!)