The Purpose of this Blog

The goal of this blog is to provide education and bring about higher awareness about Down syndrome. It is to share that life with Down syndrome (DS) is not scary, horrible, or to be feared.

My experience comes from raising my daughter, Nebraska Larae (Braska), born November 2006 with Down syndrome.
The posts on this blog are related in some way to life with DS or disability, and they are reposted here from my other family blogs. There are links to those blogs in the margin on the right side of this blog if you would like to visit them directly.

Thank you for coming by.

Tuesday, October 27, 2009

Braska: 31 for 21: Silly girl walking

I’m working hard on my walking with only holding one hand of Mommy’s and taking steps by myself sometimes too!  Here’s a movie we made at Grandma C’s and PaPaw’s on Sunday.   I was showing off a little, but everybody kept cheering for me!

Monday, October 19, 2009

Braska: 31 for 21: Signing with Jackson

Jack is my friend. You probably know that if you read my stories very much because we’re always playing together and he is in my class at school too.  I think he is pretty cool, and we always say hi and give fist bumps. (He calls it “pound it” but it’s ok with me.)

A few weeks ago, I was at Jack’s house so our mommies could make some fun shirts for us for the football games. (Mine is in this post if you want to see what we made.)

We played and climbed up the stairs (when mommies weren’t looking!!) and we even let KiKi play with us a little too.  Before we left to go home, we showed what we could do with our signing, the ones that both of us know. Here’s how it went…

Ok, Jack, you ready?
 
We’re gonna do some signing!
 
Hey, we’re gonna do a show, are you ready over there?

Let’s start with touchdown! No?
 
Ok, how about fish…
 
And hat…
 
Sign bird…
 
And cracker…
 
This is dog!
 
Sign baby… (we were very tired and ready for naps, can you tell?)
 
And now, we are All Done!

Friday, October 16, 2009

Braska: 31 for 21: Go Spartan Sparkles!!

One of my friends sent this to Mommy today and we thought you would like to see it.  It was on the news tonight, so if you watch it you might have seen it there.

Click here for the whole story.  (There’s even a little movie in there.)

Cheerleaders in Iowa are doing a really neat thing!  I can’t wait til I can be a cheerleader!  My mommy started being one when she was little like me, too.

Here’s a peek at the super cool shirt we made for me and KiKi.  (Jack has one too, but he’s not gonna be a cheerleader, probably.  He’s gonna play football or something like that.)

Braskashirt1

31 for 21: Awareness through Beauty

I did a new background for Braska’s blog last night, with her help, of course.  She is getting better about choosing between two options, so she likes to help.  And she must have liked what she chose because while I was working, as the elements were coming together on the layout, she said, “Oooh, pretty!”  It’s so fun to listen to her just come up with things like that.

Anyway, if anyone is interested, I would be glad to share the background (with your own little one’s pic instead of Braska’s of course) if you want to use it for this month or whatever.  The header is separate and can say anything or nothing at all.  Just puttin’ it out there in case…

And the “Down syndrome is… Beauty” image over there will be making it’s debut on a couple items, shirts etc, soon… if you’re interested in that.  I’ll put it in here too.

DSBeauty2

Tuesday, October 6, 2009

Braska: 31 for 21: Serious coloring

After we watched the Bears win on Sunday (Woo hoo! I got to say “Touchdown!” alot!!), we took a little trip in the car, and then we went to eat dinner.  The nice lady there gave me a paper and colors. And I was doing really good til Mommy kept flashing her camera at me.

Can you tell what I was trying to say to her with my eyes?

“Mom. Please. Let me color. Enough with the pictures.”

(Mommy note: Since we’re highlighting DS this month, note Braska’s little pinky finger on her left hand. See how it’s a little crooked.  It’s a trait of DS. And we think it’s adorable. Interestingly, it’s also not uncommon in M’s family.)

Monday, October 5, 2009

Braska: 31 for 21: Daddy’s post

My daddy put up a picture of me on his page.  He thinks I’m really cute when I get sad face.  You can look if you want.  I think he’s a little weird sometimes, but he’s my daddy, and I’ll keep him!

Sunday, October 4, 2009

Braska: 31 for 21: PT Days

One day every week I get to go see Miss A, or she comes to see me, and we do some fun stuff. We call these PT days.  If she comes to my house, we go up and down the stairs, but she doesn’t carry me. She lets me climb up by myself, and then I go down, too, but I still have to have a little help sometimes.  I’m getting better though!

Last week, we went to school to see Miss A.  First I had to get some comfy clothes on.  We work hard, you know, so I have to be able to move alot.


Then KiKi wanted to get in on the pictures.  She thinks she has to do everything I do!

I sat down to wait for a few minutes before it was time to go.  But KiKi wanted up in the chair too! 

This week Miss A had some little thing that she put on me called Ther-a-togs. They are supposed to help me stand up better or something. We always do the letters on the wall.  It’s one of my favorite things. I can say most all of the letters when she gives them to me.


That one is H.  I like H.

We also do the tricycle and we climb steps and do the slide, and sometimes we do the swing.  And my favorite thing??  It’s the Space Maze!!!  It’s the best for sure!!!  Here’s a picture of me from a few weeks ago in the top part of the Space Maze. (There’s 3 parts.) I can go all the way up by myself now and I love it!