The Purpose of this Blog

The goal of this blog is to provide education and bring about higher awareness about Down syndrome. It is to share that life with Down syndrome (DS) is not scary, horrible, or to be feared.

My experience comes from raising my daughter, Nebraska Larae (Braska), born November 2006 with Down syndrome.
The posts on this blog are related in some way to life with DS or disability, and they are reposted here from my other family blogs. There are links to those blogs in the margin on the right side of this blog if you would like to visit them directly.

Thank you for coming by.

Tuesday, February 23, 2010

Mommy report: ENT visit

What’s new, you ask??

You might have seen on the Twitter gadget on my blog that we had several things to talk to the ENT about yesterday when Braska saw him.  I took my handy dandy fancy clipboard with my questions ready. 

We addressed her sleep issues, waking frequently, and apneic episodes that have been getting worse lately. 

We’re now waiting for the sleep center to call and schedule her appointment. Depending on what is found, she may be having tonsils and adenoids removed.

We addressed her hearing issues, the fact that she’s been getting lazy with her speech, and seems to show that she’s not hearing as well as she has in the past. 

After the oh-so-fun microscopic exam of her ears, she has fluid again, 4th time in 3 months, and we’ll be scheduling surgery to insert tubes after the results of the sleep study are in.  If we need to do the tonsillectomy, we’ll combine the procedure with her tube placement to avoid anesthesia twice.  Most likely her hearing issues are related to the fluid distorting what used to be clear to her.

We addressed her incessant teeth-grinding, letting him know that it happens when she has ear issues, and it lessens or stops when her ears are clear.

After the typical “kids just grind their teeth,” he did agree that it will likely help to have the fluid situation taken care of via the tube placement.

So that’s where we stand.  We’ll hopefully get the sleep study scheduled in the next few weeks, then after those results are in, we’ll set up the tubes procedure and whatever additional things need to be done at the same time under anesthesia… possibly even dental work that is soon due.

There. You’re up to date. Thanks for asking!

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