The Purpose of this Blog

The goal of this blog is to provide education and bring about higher awareness about Down syndrome. It is to share that life with Down syndrome (DS) is not scary, horrible, or to be feared.

My experience comes from raising my daughter, Nebraska Larae (Braska), born November 2006 with Down syndrome.
The posts on this blog are related in some way to life with DS or disability, and they are reposted here from my other family blogs. There are links to those blogs in the margin on the right side of this blog if you would like to visit them directly.

Thank you for coming by.

Tuesday, March 23, 2010

Mommy report: Wired and ready to sleep

I’m home, after dropping Braska and M off at Children’s.  We got her all set up and wired up, and she did SO well.  I didn’t think she’d tolerate all the sticky things and leads, but she didn’t flinch.  Well, until they wanted to use one that would hook around her lip.  Nope, that was not going to happen.  Thankfully, her super nice tech Donna had another cannula without that hook, so all was ok.

Here’s a pictorial version of the process.

The little TV with Sprout on it was the saving grace.  She stayed focused on that and didn’t mind the rest of the action happening to her. 

She was happy that Daddy was in p-jammies too and was ready to snuggle.

The final look, cannula and all.

A hug from Mommy before I left for the night.  She was plenty tired.

Last minute adjustments.  She had leads on her legs, chest, face, and head.

Ready to sleep, Daddy close to make sure she went down ok.

Quite a bunch of wires for such a small girl.

And finally, here’s a little clip with one sleepy girl’s “good night.” 

1 comment:

Momma B said...

Braska, you are such a big girl! I am VERY proud of you! I don't know if I could have been such a big girl!?!