The Purpose of this Blog

The goal of this blog is to provide education and bring about higher awareness about Down syndrome. It is to share that life with Down syndrome (DS) is not scary, horrible, or to be feared.

My experience comes from raising my daughter, Nebraska Larae (Braska), born November 2006 with Down syndrome.
The posts on this blog are related in some way to life with DS or disability, and they are reposted here from my other family blogs. There are links to those blogs in the margin on the right side of this blog if you would like to visit them directly.

Thank you for coming by.

Wednesday, March 31, 2010

Not a spring chicken after all

This was mid morning.  She was pretty chill and quiet this morning, but smiles were there.  (Note the shirt…spring chicken…funny.  Thanks Amy and/or Jen!)

This is about 5:30p. 

She stayed there for a while, then sat up, scooted over a little, and…

Something’s not right.  She has a fever of 100.5, which is quite significant for her generally cool normal temp. 

My issue: She is on day 4 of her Omnicef, Zyrtec, Singulair, and Nasonex combo.  She has been very obstinate and difficult at school this week—though she was a little better today, according to report.  She’s only going half-days (90 mins) at school this week, on advice from the doc to give her more rest and time to strengthen from all this illness. Her congestion is better, though she’s still pretty snotty.  It’s been nice to have her sleeping better, breathing quietly while sleeping, and I’m pleased with that improvement.  So until the fever today, I was a fan of the new regimen.  And I have no hard evidence that any medicine is causing her personality changes.  But I don’t like unknowns.

Could it be that she’s just 3, as far as her behavior?  Sure.  But combined with the other issues, who knows. 

Oh, and she has not wanted to walk tonight, while she’s had her fever.  She won’t hardly sit up, and will NOT stand or walk.  She’s been loving walking, since she’s progressed so well, and has been spending more time on her feet.  Then yesterday at school, and before school even, she wasn’t wanting to walk.  She did do ok at school, bearing weight some, but she was throwing things and yelling her protests, not cooperating, all very unlike her.

Once again, no answers, but something in my gut feels like something’s just not right.  I’m about ready to have some blood work run, just to make sure nothing odd shows up.  I called the dr tonight that we saw on Saturday, so we’ll see if she calls me back. I told them it wasn’t urgent, so it might be tomorrow.  Hopefully she’ll perk up soon.

Thoughts or ideas anyone?

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