The Purpose of this Blog

The goal of this blog is to provide education and bring about higher awareness about Down syndrome. It is to share that life with Down syndrome (DS) is not scary, horrible, or to be feared.

My experience comes from raising my daughter, Nebraska Larae (Braska), born November 2006 with Down syndrome.
The posts on this blog are related in some way to life with DS or disability, and they are reposted here from my other family blogs. There are links to those blogs in the margin on the right side of this blog if you would like to visit them directly.

Thank you for coming by.

Wednesday, July 16, 2008

It's a...

Baby, just one, and it wiggles. That's what we learned today from the MFM specialist, Dr. H. The due date is still iffy, in my opinion, but it'll be the first half of Feb sometime.

I was given all the ins and outs of the screenings and tests available. I explained that I'm not worried about things unless it's something that requires a change in care or delivery plan. We'll do the basic stuff and have plenty of ultrasounds.

The doctor asked what resources I found to be helpful when we got Braska's diagnosis. So I had an opportunity to talk about everything from our local group in Champaign to the blogs and forums that really made the difference for me. I let him know that I always want to be available to any practices that I'm involved in with work or as a patient if they have a situation where I can be of help. This is the office that delivers prenatal diagnoses to women, so I love that he is open to learning how to do it in a more helpful way. I told him of Braska's blog and he asked if he could write it down to share. I had blog cards with me, so I gave him a couple and said I'd be happy to talk to anyone if they ever thought it would be helpful. But often, it's much less intimidating for someone with new fears and questions to be able to simply look through a blog or forum than it is to talk to someone. So I'm so glad that we might be able to help someone get a more realistic view of Down syndrome and put a cute little smiling face with the big bad diagnosis.

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