The Purpose of this Blog

The goal of this blog is to provide education and bring about higher awareness about Down syndrome. It is to share that life with Down syndrome (DS) is not scary, horrible, or to be feared.

My experience comes from raising my daughter, Nebraska Larae (Braska), born November 2006 with Down syndrome.
The posts on this blog are related in some way to life with DS or disability, and they are reposted here from my other family blogs. There are links to those blogs in the margin on the right side of this blog if you would like to visit them directly.

Thank you for coming by.

Monday, July 7, 2008

The new same ol'

I've had alot I thought about blogging about, but I can't seem to find 5 minutes of lucidity to compose any thoughts. How you 3-a-day-post-people do it....I'm so clueless.

Braska's got 5 therapy appointments per week now, so that in itself makes for busy. And this week we added an appointment for me today, and an appointment for her with the pediatrician tomorrow. That's alot of places to be in 5 days. Oh, and we're also going to look at houses tomorrow night, but it's very preliminary.

This weekend we spent 3 days in South County with the fam, I'm thinking we need a vacation home there already. Am I glad the drive is only 40 mins? Yes!! Do I kind of wish for weekends like this it was 10? Yuppers. I'm so darn exhausted. We had a great 4th hanging out at Cindy's place by the pool. Then Saturday Cheryl had a graduation party and we hung out some with Jerry and Nadine, relatives from Iowa, who were in town. Sunday it was back down for church and lunch before Jerry and Nadine took off, then hangtime at the parents for the afternoon. This coming weekend my brother-in-law is getting married, so we're headed south again, but they're worth it.

We had to find another place for Belle to go. She offended her host, so we found another willing party to take her. Thank you Nancy!!!!!!! I think she'll be very happy. I just want her to be happy, but I'm sure she is confused, and that's sad to me.

For those of you who like preg updates... I'm feeling icky and un-good, but nothing like the bad most of you probably deal with. Just a constant not-good that lets up for a few hours in the middle of the day. It sure makes normal things more difficult. I'm having some sleep issues, but I think they're related to exterior influences, not the tummy baby. I went to the OB today, very nice doc. She is sending me to an MFM (maternal fetal medicine specialist) next week for an ultrasound to determine when this baby's gonna get here. And of course, I'm high risk, ya know. Will be 35 when I deliver, history of baby with chromosomal issues and heart defect.... and some other stuff. High risk. Watch out! I agreed to go because I don't mind ultrasounds, but I made clear that I'm not interested in the invasive testing... what? we may have a kid with a chromosomal abnormality? No! Say it ain't so! Yeah, that would be the easy option, we've decided. We KNOW how to do THAT! It's them regular kids we don't know what to do with.

Alright, enough of this stream of consciousness blogging. Dangerous, it is. And I don't cotton to such things. Time to try to sleep again.

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