The Purpose of this Blog

The goal of this blog is to provide education and bring about higher awareness about Down syndrome. It is to share that life with Down syndrome (DS) is not scary, horrible, or to be feared.

My experience comes from raising my daughter, Nebraska Larae (Braska), born November 2006 with Down syndrome.
The posts on this blog are related in some way to life with DS or disability, and they are reposted here from my other family blogs. There are links to those blogs in the margin on the right side of this blog if you would like to visit them directly.

Thank you for coming by.

Friday, January 9, 2009

Princess Eliana

We have about 40+ blogs that we keep up with for kids and families with DS. I often say that the blogs have been our lifeline, and I have most definitely learned more from them than any medical or "official" site. So many of you have become like "real" friends, and it feels like we just never get to really hang out! I appreciate all the emails and behind the blog stuff that we share with so many of you... that makes my days brighter every single time.

I could list all the adorable kids who make me smile and it could go for days... but today I want to pick out one little gem. Miss Eliana is a princess who has traveled much the same road as Braska, and her mom Leslie is a marvelous example of a great mother and a kind and caring friend, it's clear. Eliana was born about a month after Braska, she had similar heart issues, she had a G-tube for a while, but she has blossomed into just an absolute doll who is wowing lots of people and especially her family who adores her.

Yesterday, Leslie posted a couple of pics, both are beautiful, but one of which just stole my heart. It captures what I imagine is Eliana's wonderful personality and obvious spunk. Even though I've never had the pleasure of meeting them in person, I really am thankful for the influence they've been on me in the logistics of the things we've been through and the encouragement it is to watch Eliana do so well.

Take a minute and go see Princess Eliana. She is one very special gift from God. And please give your little ones a hug for us too... we wouldn't be nearly as sane without all of you blogging buddies!!

No comments: