The Purpose of this Blog

The goal of this blog is to provide education and bring about higher awareness about Down syndrome. It is to share that life with Down syndrome (DS) is not scary, horrible, or to be feared.

My experience comes from raising my daughter, Nebraska Larae (Braska), born November 2006 with Down syndrome.
The posts on this blog are related in some way to life with DS or disability, and they are reposted here from my other family blogs. There are links to those blogs in the margin on the right side of this blog if you would like to visit them directly.

Thank you for coming by.

Sunday, March 15, 2009

Feed them and they will grow

Ok, so this might be so not exciting to most people on the planet, but my kids are gaining weight. In our house, that's SOMETHING!

When the girls were weighed on Friday, Kinlee was 9 lb 3 oz. Less than 5 weeks old, born at 7 lb 6 oz. What?!? How does that happen? Maybe that's normal to some people, but not for us. I weighed her THREE times just to be sure it was right. I can't believe she's gaining that fast. Braska was at least 2 months, closer to 3 when she got there. She was 11 lbs at her surgery at 3 months after us stuffing her with tube feeds. Then she was back to 10 lbs at 4 months, 15 lbs at 12 months.Which brings us to the next bit of info....

Braska was 22 lb 1 oz!!!!! That's crazy! This from the girl who gained only 4 lbs between her first and second birthdays. 3 months ago she was just shy of 20 lbs, now she's over 22?

I suppose it's about the intake...go figure. Kinlee is eating like a champ, though I didn't think nearly enough to gain that much. And Braska has still been eating her few tablespoons of food a couple times a day, in addition, of course, to her regular tube feeds of Pediasure. But her few tablespoons add up to some decent calories, sometimes 30% more calories in a day, so it's making a difference!

Crazy. Just amazing. But we'll take it.

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