The Purpose of this Blog

The goal of this blog is to provide education and bring about higher awareness about Down syndrome. It is to share that life with Down syndrome (DS) is not scary, horrible, or to be feared.

My experience comes from raising my daughter, Nebraska Larae (Braska), born November 2006 with Down syndrome.
The posts on this blog are related in some way to life with DS or disability, and they are reposted here from my other family blogs. There are links to those blogs in the margin on the right side of this blog if you would like to visit them directly.

Thank you for coming by.

Saturday, March 21, 2009

Missing the point

I don't often like to reply to comments in another post, but sometimes it seems the way to go. No, I'm not going to rant, so if you're looking for drama, sorry to disappoint.

I'm in a bit of rush...ya know, new baby, toddler, and this will be relatively short.

I'm not all that sensitive about this kind of thing--questionable jokes, using the wrong words, or words in the "wrong" order--related to the disability community. I'm in the minority in many circles that I travel in due to this. I understand the outrage at the "r-word" and I know the PC way to say things, but I admit I don't really react with the fervor that many do. That's just the honest truth. So this is not me flipping out about his comment about the Special Olympics. It's more about what it may indicate. And one thing I do agree with many of my friends and acquaintances in the world of developmental disabilities... it's not just a joke. And if it hurts someone, it's worth not saying. Check out Sarah's letter and see how she feels about it. She understands more than any of us can, and she has a great perspective.

To the anonymous poster(s): Yes, we all say things we shouldn't. I have loads of things I've said and joked about that aren't very nice. I'm not at all afraid of karma. I'm a Christian and I'm a Republican (barely) and I'm FAR from perfect. If you know anyone who is either of those, or Democrat, or agnostic, or whatever, and is perfect, please let's name them and celebrate them. That is not my point. And it has nothing to do with judging or forgiveness or anything so drastic... As I said in a comment on my friend Michelle's blog today, "It's amazing to me mostly because things said in jokes with our guards down usually indicate our inner thoughts. That's the part that concerns me. Only time will tell, in this situation." My issue is that it indicates more than the surface. Mr. President is know for his communication, "openness," and has more dyed-in-the-wool followers than I've ever seen. Yet when he is kicking back and chatting about something as insignificant as bowling, this is where it goes. No, it's not the end of the world. But I fear it may be a peek at something inside, possibly subconscious. I hope I'm wrong.

To Heidi: Hey girl! You're right. Anonymous comments are allowed on the blog because many don't have logins to Blogger or the other options. And I don't mind an occasional unsigned comment, but if a person feels strongly enough to carry on a conversation and make generalizations, it does seem right to be willing to identify yourself. I think I've proven in the past that we can agree to disagree and still maintain bloggy civility.

To Jason: Dude, you rock. I'm always glad you've got our backs, especially since you guys are unconditionally adoring fans of our Braska girl. That means alot, my friend. And your second comment... right on. You GET it. Thanks!!

To the rest of you, commenters here and via email: Thanks for getting it. Thanks for knowing me well enough to know that I'm not lynching the guy, just making an observation and hoping for better things with the knowledge gained from today.

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